“Hurry up and wait” is a phrase that some who have served in the military my be familiar with. It is also a phrase that describes something that those who have Huntington’s Disease or care for someone who has it have to keep in mind in their day-to-day.
When Jan and I went to the Huntington’s symposium last year, one of the speakers told a story of speaking with a man with HD. He would ask a question and the man wouldn’t answer right away, so the speaker would ask him a further question to clarify. The man again wouldn’t answer right away. After a few minutes of this, the speaker asked the man if he was getting frustrated and the man told him that he indeed was getting very frustrated. The man said that the speaker kept setting his clock back. When asked what he meant the man described his thinking process as a hand on the clock. As he tried to process each question, the hand was moving from twelve o’clock toward six o’clock. Each time the speaker asked him another question, the hand was interrupted in its movement and had to reset back to twelve o’clock.
Hurry up and wait is one of those aspects of the new normal for those affected by HD. The processing of questions, ideas, etc. is slowed down. As the disease progresses, the person may lose a great deal of the ability to carry on conversations because of the length of time needed to process. This can lead to frustration for the one who has HD, the ones who are caretakers, and friends and other family members. Hence the reminder to hurry up and wait. Patience is needed by all involved. Those with HD can be just as frustrated, if not more so, than others around them.
As we journey together through this new normal, we are having to learn to be patient. I am learning that the answers will come if I am patient enough to wait. Jan is learning to be patient with me when I just think about the “hurry up” part of the phrase. Even though it is not easy, I think it has given me a greater appreciation of Jan as my wife and as a human being with worth, regardless of whether or not she comes up with a quick response.
I would appreciate your prayers as we journey down this back road together.