This is from the Rabbit Room.
Eastertide Thoughts
It has been one week since those of us in the western church celebrated Easter. The Orthodox tradition will celebrate Easter on May 2 this year. Eastertide is the period between Easter Sunday and Pentecost, so the celebration continues in many churches for a full 50 days. Personally, I think that’s a good idea.
This year, I’ve been doing much more thinking about the importance of Easter to those of us who follow the One who was raised from the dead. I think a 50 day celebration of the event that changed history is something that should be practiced much more than it is now.
This has been a momentous year for many of us, with a lot of things happening that caused us to think about what is really important and about the brevity of our lives here on this earth. A little over a year ago, I had a heart attack. Within a couple of weeks, everything was locked down because of a deadly virus. We didn’t get to celebrate Easter in person last year. We didn’t get to do a whole lot of anything in person last year.
We saw the number of cases and deaths grow as the year went on, and very few of us didn’t at least know someone who caught the virus. Add to this what seemed to be the death of reason and understanding in the civil discourse in this country, and the year looked more bleak as it dragged on. We made it to the end of the year, but the future looked very uncertain.
In some ways the future is looking better. In other ways, there is still turmoil and uncertainty. Personally, my health is much better now, but there are things that have happened to keep the realities of life in a broken world in the forefront. From friends and neighbors who have cancer to friends whose parents have fallen ill, from families that are broken to our small town reeling from a senseless murder and suicide, there is much to make one wonder if there really are any answers.
There are many questions that we may never have answered fully. There are some that may not be answered at all. That is why Eastertide this year has become meaningful to me. I believe that Easter is the answer. We may not have all the details filled in for us, but Easter means that death has been brought down, had all its teeth kicked out, and ground into the dust in defeat.
Because King Jesus rose from the dead and inaugurated his kingdom, I know that my friends with cancer will unltimately be healed and will live in the new creation. I know that there will be peace on earth and the swords will be beaten into plowshares, and there will be no war. I know that there will be no hatred or murder, no struggle over possessions, or arguments over ideas. There will be no cancer, heart trouble, Alzheimer’s or Huntington’s Disease. Every tear will be wiped away and everything sad will become untrue.
Let us rejoice and feast! Break out the champagne! There is nothing worth celebrating more than the fact that death has lost its sting, and the grave has no victory. It is not the end yet, but it will be all right in the end. Hallelujah! Christ is risen!
Little Bit of an Update
This past week, Jan and I had the opportunity to take part in the Huntington’s Disease Society of America (HDSA) national convention. Because of the pandemic, it was a virtual gathering. It was both informative and inspiring. There were sessions on what to expect, advances in research, and how others were coping. Due to our schedule, there were many things we couldn’t get to, but it was all recorded and will be on the HDSA website.
As Jan’s HD progresses, it was good to be given a sense of what lay ahead. Even though it will get more difficult, it is comforting to be armed with the knowledge of what is going on and some ways we can cope. It was also good to see how different people were dealing with the disease. There was not a sense of despair or sadness. There was more of a feeling that this is the way it is and right now we have to deal with it and live our lives as best we can.
There is also good news for the future. There is promising research that may lead to making HD a disease that we used to talk about. It’s possible that some day the faulty part of the gene will be tweaked and will not be an issue. While we don’t know if it will happen soon enough to help Jan, there is hope for our children and grandchildren.
Please continue to pray for us as we navigate the changes that will happen and learn to deal with each new normal as it comes up.
Musings From the Past Few Days
Last Wednesday, my life changed. That afternoon I experienced what someone my age hopes will never happen. My heart decided I needed to take a little trip to the emergency room. After arriving by ambulance and having a couple of EKGs done, the cardiologist on duty decided that it was time for me to go to the emergency heart cath room. While there, the doctor found that the artery in back of my heart was 95% blocked and a stent needed to be inserted. While this was happening, my heart tried to make things even more difficult. Fortunately it calmed down and the procedure was completed. After resting in the hospital for a couple days, I was able to go home on Saturday. I am feeling much better and getting anxious to start rehab and get back to some semblance of normal, although I know that the definition of normal will be different.
Between my adventure and all that is going on around the world with the COVID19 virus, I have had some time to think. One thing that something like a heart attack or pandemic will do is cause us to come to grips with what really is important.We chase around trying to find significance in so many different things and we many times forget what really counts. The current virus has pretty much brought the world to a standstill. Almost all sporting events have been cancelled, and the Olympics are in danger of not happening this summer. Restaurants, theaters, even churches are shuttered in an attempt to flatten out the curve and get ahead of this. It is likely that folks will begin to lose jobs, and there is the very real threat of a global recession. There is a great deal of fear as the unknown looms.
All of the dislocation and hardship that folks have gone through or will go through is hard and I don’t want to downplay or minimize their suffering. I grieve with those who are grieving the loss of opportunities, jobs, or especially the loss of loved ones. I am not suggesting that my thoughts are the answer for anyone else. The recent events in my own life and the “new normal” Jan and I are already dealing with, have led me to do a lot of taking stock, trying to determine what is really vital.
First, my relationship with God is the most important thing. Without that, there is nothing else. Loving God with every fiber of my being is the one thing. Next after that comes loving Jan as Jesus loved the church, giving myself for her. Then comes loving my children and their families and being a good grandad. Beyond that comes loving my brothers and sisters in Christ, especially those I am in community with, as Jesus loved me. Then there is loving my neighbor as myself. Regardless of what else may happen in the days and years ahead, if I can do those things I will consider myself to have done well.
Have you thought about these things? What do you consider to be most important?
A New Year
Today we enter into a new year. Not only a new year, but also a new decade. Yes, I know that technically the new decade begins next January. But it is the 20s now, so I’m going with calling this a new decade.
I’ve seen a lot of talk about reviewing the past decade, ten year plans, etc. I think it’s a good idea to look back over the last few years and see the changes that have occurred in our individual lives, in our families, and in our world. As I look back over the time since 2010, I can think of a number of things that are different as I enter 2020.
Ten years ago, Jan and I were parents of two unmarried young adults. Now we have added a daughter-in-law, a son-in-law, and three grandchildren. In 2010 I was working as a teacher’s assistant and Jan was working at an assistant living facility. As this decade begins, I am a driver at a retirement community and Jan is semi-retired and tutoring. During this time we have lost Jan’s father and oldest sister.
Ten years ago, we were helping plant a church that met in a bagel shop. In the past ten years the church plant ceased to be and we are now part of a small Presbyterian church that seeks to serve our city. Since 2010, I have lost about 25 pounds and been able to keep it off. My hair has become grayer, and my joints creakier. When the last decade began, we had never heard of Huntington’s Disease. As the new decade begins, we are dealing with the reality of Jan having HD, and all of what that means.
As I look back on the last ten years, I see some happy times and some sad times. I see times of accomplishment and times where I wonder what in the world I was thinking. Sometimes life seemed relatively normal and sometimes it seemed like a long, strange trip. There were times when my faith was strong and there were times when my usual prayer was, “Lord I believe, help my unbelief.”
As I look ahead to the 20s, I don’t know if they will be roaring or calm. I am not even going to attempt a ten year plan and my crystal ball shattered long, long ago. The only thing I do know (and have to constantly remind myself of) is that my Father in heaven loves me and my family with a furious, inexhaustible love and will bring everything about for my good and his glory.
Check back in another ten years. Maybe.
Hurry Up and Wait
“Hurry up and wait” is a phrase that some who have served in the military my be familiar with. It is also a phrase that describes something that those who have Huntington’s Disease or care for someone who has it have to keep in mind in their day-to-day.
When Jan and I went to the Huntington’s symposium last year, one of the speakers told a story of speaking with a man with HD. He would ask a question and the man wouldn’t answer right away, so the speaker would ask him a further question to clarify. The man again wouldn’t answer right away. After a few minutes of this, the speaker asked the man if he was getting frustrated and the man told him that he indeed was getting very frustrated. The man said that the speaker kept setting his clock back. When asked what he meant the man described his thinking process as a hand on the clock. As he tried to process each question, the hand was moving from twelve o’clock toward six o’clock. Each time the speaker asked him another question, the hand was interrupted in its movement and had to reset back to twelve o’clock.
Hurry up and wait is one of those aspects of the new normal for those affected by HD. The processing of questions, ideas, etc. is slowed down. As the disease progresses, the person may lose a great deal of the ability to carry on conversations because of the length of time needed to process. This can lead to frustration for the one who has HD, the ones who are caretakers, and friends and other family members. Hence the reminder to hurry up and wait. Patience is needed by all involved. Those with HD can be just as frustrated, if not more so, than others around them.
As we journey together through this new normal, we are having to learn to be patient. I am learning that the answers will come if I am patient enough to wait. Jan is learning to be patient with me when I just think about the “hurry up” part of the phrase. Even though it is not easy, I think it has given me a greater appreciation of Jan as my wife and as a human being with worth, regardless of whether or not she comes up with a quick response.
I would appreciate your prayers as we journey down this back road together.