Category: Jan

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A New Bend in the Road

A little over twenty seven years ago, we moved from Cincinnati to Rock Hill, South Carolina. At that time we said that we were never moving again. Famous last words! We have just moved into a new house. The house and yard had become more than we could handle and we decided we needed a smaller place. Added to that were some repair issues that had become expensive due to a plumbing mishap. Did I mention that I hate plumbing?

After a few months of sort of looking, but sort of not, we got serious and put our house on the market. Knowing that we were looking for a smaller place meant that we had to let a lot of things go. We began to look at all the stuff that had accumulated over the years. I had inherited the “maybe I can use this someday” gene from my father, so there was quite a bit. The challenge was to pare the things from a 1500 square foot, three bedroom. two bath home with a dining room, garage, back patio, shed and a half acre yard down to where they would fit into an 850 square foot, two bedroom, one bath house with less than a quarter acre lot.

I made numerous trips to charitable organizations and to our county’s waste/recycling center. Facebook Messenger became our friend. It was hard to let go of many of the things, especially furniture. Fortunately, we made some money from selling much of the furniture and a great deal of it went to people who would get good use of it. One couple bought a dresser and were going to donate it to a local women’s shelter, and we sold a rocker and footstool to a couple that was expecting their first child. That was a blessing to us. Our son and daughter-in-law, and daughter and son-in-law have been an amazing help with the purging and the planning.

We moved into the house the week after Thanksgiving. I have again made numerous trips to recycling and charitable places. As it turned out, we used a lot of cardboard boxes and also had to do more downsizing. It’s been a busy week and a half, and there is still furniture to put together and positioned, art to hang, and stuff to put away. I’m going to hold off on the yard until the spring.

It was hard to leave a place where we made so many good memories. Fortunately we can carry those memories with us and we will make new ones. We are closer to our church community, and to many other places and activities we have been a part of. The move has been stressful at times, and there were even a few times when I wondered if it was worth it. At those times, I could sense the Father saying, “I got this.” Jan and I are looking forward to getting to know our neighbors and learning to love them well, and to what lies ahead of us on this part of the journey.

We’re not moving again. I guess I shouldn’t be saying that should I?

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Encouragement From a Lamppost

Last night was a night of fitful sleep and unsatisfying dreams. When I awoke this morning, I was feeling the weight of a number of things that are happening in this little conrner of the world. The events of the past few months and the strain that has put on relationahips of people that I know, the friend who is waiting for a possible diagnosis of cancer, and the friend whose mother just had a stroke, along with the stresses of helping lead a faith community to follow Jesus more closely. These are on top of dealing with Jan’s HD and all that goes with it, and trying to keep myself healthy.

When I went to the kitchen to make coffee, I looked out the window into our backyard. What I saw was similar to the picture above, minus the snow and fir trees. It was about 6:45, and the sky was just beginning to lighten. What I saw was unusual because the lamp had never stayed lit all through the night before this, and the previous day had been cloudy. I had bought that particular lamppost because it reminded me of the lamppost in the Chronicles of Narnia by C.S. Lewis.

When I saw the lamp still lit, the first thing that I thought (I believe it was God speaking to my heart) was, “There is still hope.” In the Narnia tales, the lamppost marked the border between Narnia and the wardrobe in the spare room. In some way it signified hope, because it was there that the story of Aslan coming and reclaiming Narnia began. As you read through the rest of the books, there is always an undercurrent of hope, no matter how dire the circumstances.

I have no idea what is going to happen in each of those situations I mentioned. I know I am praying for healing and restoration, but I also know that the final outcome is beyond my reach. But there is still hope. There is still the hope that no matter what happens, my loving Father has us all in his hands, and he always does what is good and right. There is still hope that the King of Kings will return and make everything right, healing every hurt and wiping every tear. There is still hope that Romans 8:18-39 is true.

You may be going through something similar, or worse. Things may well seem hopless to you. I would encourage you to look to the One who alone can give hope. Look to the King who has conquered death and who is bringing a new creation. Look to him because, to be honest with you, without him it is hopeless.

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Reflections at 65

Yesterday I completed my sixty fifth year on this earth. It seems hard to believe it’s been that long, yet at the same time it feels like a long time has past. There have been a lot of changes over the years, in me and in the world around me. When I was born, Dwight Eisenhower was President. Many more have come and gone, some good, some bad. Communication has gone from rotary phones with party lines to Dick Tracy style wrist watches with video calling. Back then, a zoom meeting meant driving fast across town to a particular location. Wars used to be fought in person, now they are sometimes fought remotely.

Over the years, I have gone from being a rail thin youngster to a chubby middle age man to a slightly slimmer senior. I used to be athletic, now my knees ache when I get up in the morning. As a matter of fact, a good bit of my body aches in the morning. I have finally learned that when my mind tells me I can do something that I used to be able to do, I shouldn’t listen. My body always disagrees with my mind, and it is usually right. I have had the opportunity to continue my athletic career as a coach, and been able to coach some pretty good athletes, including my children. Because I coached, I also drove buses and have been able to turn that into in-between jobs, and finally into the job I have now.

I have learned a few things along the way. Some of them are important and some are good answers to trivia questions. I have learned that a great many of the things we think are vital are not, and some of the things we think are inconsequential are extremely important. Even though I still get upset more than I should, I have come to realize that there are really very few things in this life worth getting upset about. More and more, my philosophy is boiling down to, like Karl Barth, Jesus loves me this I know, for the Bible tells me so, along with love God and others. I have found that holding those thngs closely makes things simpler and more complex. I do believe if more of those of us who call ourselves Christians would live in the realization that we are loved by God and are to love him and our neighbor, this world would be a much better place.

I am truly blest by the Father. He has given me a wonderful wife, two fantastic chidlren, and three of the best grandchildren in the world, with one more on the way. Jan and I are part of a beautiful community of fellow Jesus followers. I have been able to do things that I loved, both in work and play. I have seen some amazing things and met some amazing people. As the years have gone by, I have become more and more grateful for all my blessings and for all the lessons I have learned, even the hard ones.

None of us knows what the future holds. That is not in our hands. I am thankful that my loving Father has the future in his hands. I hope to spend many more years traveling the back roads of life trying to keep up with Jesus.

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Forty Years and Counting

It was a different time. The nation had experienced some healing from Vietnam and Watergate. The economy was not in very good shape. Iran held Americans hostage. The Reagan Revolution was just a soon to be realized dream for the Republican Party. The Miracle on Ice was a recent memory and the Summer Olympics would take place without the United States, as well as a number of other countries.

We were different as well. We both were much younger and both of us had more hair. Jan’s hair is simply shorter, while mine is simply gone and my beard is now white. We were both teachers then, and while Jan has kept her hand in, I have bounced around among a variety of jobs.

During these last forty years, we have lived in a number of different homes in three cities. We began life as a couple in the Washington, DC area, spent some time in the Cincinnati area, where our family grew from two to four. For the last twenty five years we have called the small city of Rock Hill home. Our son and daughter grew up here, and left the nest to pursue their own path. In the ensuing years, we buried our parents, moved on to new jobs, and found a community of faith that has become a family.

Through the years, much has changed. We have been on the heights, and we have been through the valleys. This journey together has not always been an easy one, and the road has always been winding. There have been times of plenty, and times when we struggled financially. We have never been “wealthy” in the usual sense, but God has always provided. We have argued and been angry with one another, and made up and moved on.

What has never changed is our love and commitment to each other. As our lives took the twists and turns, we knew that the other one was with us and we were on this journey together, come hell or high water. We learned to communicate and that has been a major factor in our marriage. We still face the challenges of life. Both of us are growing older and dealing with those issues. Jan’s HD is a big challenge. But we are facing these things together, as we have always faced life. We are trusting our heavenly Father to take care of us, as he always has.

Forty years. It seems like a long time, over half of our lives, yet it somehow feels like a blip on the screen of time. We may celebrate another forty years, we may not. No matter how many more years God gives us, I know that I am truly blessed to be married to a beautiful woman who is a wonderful partner.

Jan, I am so thankful to the Father for bringing us together and allowing us to spend these years together as one, and I pray he gives us many more years to journey through this life.

I love you more than yesterday, and less than tomorrow.

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Little Bit of an Update

This past week, Jan and I had the opportunity to take part in the Huntington’s Disease Society of America (HDSA) national convention. Because of the pandemic, it was a virtual gathering. It was both informative and inspiring. There were sessions on what to expect, advances in research, and how others were coping. Due to our schedule, there were many things we couldn’t get to, but it was all recorded and will be on the HDSA website.

As Jan’s HD progresses, it was good to be given a sense of what lay ahead. Even though it will get more difficult, it is comforting to be armed with the knowledge of what is going on and some ways we can cope. It was also good to see how different people were dealing with the disease. There was not a sense of despair or sadness. There was more of a feeling that this is the way it is and right now we have to deal with it and live our lives as best we can.

There is also good news for the future. There is promising research that may lead to making HD a disease that we used to talk about. It’s possible that some day the faulty part of the gene will be tweaked and will not be an issue. While we don’t know if it will happen soon enough to help Jan, there is hope for our children and grandchildren.

Please continue to pray for us as we navigate the changes that will happen and learn to deal with each new normal as it comes up.

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Thoughts on Easter 2020

The Easter season was a bit different this year. Instead of gathering in person with our brothers and sisters to celebrate the resurrection of Jesus, we gathered around our computer for a livestream service via Zoom. In stead of greeting dear friends with a hug, we waved to the images on the screen. Instead of getting together with friends or family for a feast, we had an Easter dinner for two in our dining room. It was a very good day, and I am grateful for what we were able to do, but it was different, in a strange way.

The coronavirus pandemic, which has devastated much of the world, has changed the way we do just about everything. Many people have been at home for a number of weeks, as “shelter in place” becomes the norm. The great majority of churches have closed their doors, either meeting on line, watching services on television, or not meeting at all. Businesses have been forced to close, and social distancing has forced upon us a new way of relating with each other.

Jan and I found some positive things coming out of an Easter weekend during time of quarantine. We gathered on line with friends Thursday for an altered Seder, followed by an online Maundy Thursday service. Friday evening we watched a Tenebrae service online, and Saturday found us experiencing an Anglican Easter vigil on line. Even though we didn’t do the things we normally do this time of year, we were able to experience a little of the breadth of the the Christian tradition’s celebration of the resurrection.

As the pandemic continues, many of the things we have taken for granted will have to be abandoned or revamped. The ways we work, shop, relate to others, and do church may look totally different in the days ahead. I think that will turn out to be a good thing. There are things that we need to change as individuals, families, churches, nations. As we come to grips with what is really important in our lives, we can become more understanding people, who treat each other as persons made in the image of God. As we learn to work together, we can become more unified. Maybe we can conduct our public lives with an eye toward what is best for all, rather than for our side of the aisle. As churches are forced out of the routine, maybe we can rediscover that the church is not the four walls, but is the family of God who are called to love and serve our neighbors.

Easter is all about hope. The hope that all will be made right, and we will be resurrected. In the midst of tragedy and hopelessness, we can know that Jesus defeated death. Because he walked out of that tomb, nothing will stand in the way of our Father’s plans to restore his creation. Nothing can change that. As the apostle Paul wrote, “Who shall separate us from the love of Christ? Shall trouble or hardship or persecution or famine or nakedness or danger or sword? No, in all these things we are more than conquerors through him who loved us. For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.”

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Musings From the Past Few Days

Last Wednesday, my life changed. That afternoon I experienced what someone my age hopes will never happen. My heart decided I needed to take a little trip to the emergency room. After arriving by ambulance and having a couple of EKGs done, the cardiologist on duty decided that it was time for me to go to the emergency heart cath room. While there, the doctor found that the artery in back of my heart was 95% blocked and a stent needed to be inserted. While this was happening, my heart tried to make things even more difficult. Fortunately it calmed down and the procedure was completed. After resting in the hospital for a couple days, I was able to go home on Saturday. I am feeling much better and getting anxious to start rehab and get back to some semblance of normal, although I know that the definition of normal will be different.

Between my adventure and all that is going on around the world with the COVID19 virus, I have had some time to think. One thing that something like a heart attack or pandemic will do is cause us to come to grips with what really is important.We chase around trying to find significance in so many different things and we many times forget what really counts. The current virus has pretty much brought the world to a standstill. Almost all sporting events have been cancelled, and the Olympics are in danger of not happening this summer. Restaurants, theaters, even churches are shuttered in an attempt to flatten out the curve and get ahead of this. It is likely that folks will begin to lose jobs, and there is the very real threat of a global recession. There is a great deal of fear as the unknown looms.

All of the dislocation and hardship that folks have gone through or will go through is hard and I don’t want to downplay or minimize their suffering. I grieve with those who are grieving the loss of opportunities, jobs, or especially the loss of loved ones. I am not suggesting that my thoughts are the answer for anyone else. The recent events in my own life and the “new normal” Jan and I are already dealing with, have led me to do a lot of taking stock, trying to determine what is really vital.

First, my relationship with God is the most important thing. Without that, there is nothing else. Loving God with every fiber of my being is the one thing. Next after that comes loving Jan as Jesus loved the church, giving myself for her. Then comes loving my children and their families and being a good grandad. Beyond that comes loving my brothers and sisters in Christ, especially those I am in community with, as Jesus loved me. Then there is loving my neighbor as myself. Regardless of what else may happen in the days and years ahead, if I can do those things I will consider myself to have done well.

Have you thought about these things? What do you consider to be most important?

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A New Year

Today we enter into a new year. Not only a new year, but also a new decade. Yes, I know that technically the new decade begins next January. But it is the 20s now, so I’m going with calling this a new decade.

I’ve seen a lot of talk about reviewing the past decade, ten year plans, etc. I think it’s a good idea to look back over the last few years and see the changes that have occurred in our individual lives, in our families, and in our world. As I look back over the time since 2010, I can think of a number of things that are different as I enter 2020.

Ten years ago, Jan and I were parents of two unmarried young adults. Now we have added a daughter-in-law, a son-in-law, and three grandchildren. In 2010 I was working as a teacher’s assistant and Jan was working at an assistant living facility. As this decade begins, I am a driver at a retirement community and Jan is semi-retired and tutoring. During this time we have lost Jan’s father and oldest sister.

Ten years ago, we were helping plant a church that met in a bagel shop. In the past ten years the church plant ceased to be and we are now part of a small Presbyterian church that seeks to serve our city. Since 2010, I have lost about 25 pounds and been able to keep it off. My hair has become grayer, and my joints creakier. When the last decade began, we had never heard of Huntington’s Disease. As the new decade begins, we are dealing with the reality of Jan having HD, and all of what that means.

As I look back on the last ten years, I see some happy times and some sad times. I see times of accomplishment and times where I wonder what in the world I was thinking. Sometimes life seemed relatively normal and sometimes it seemed like a long, strange trip. There were times when my faith was strong and there were times when my usual prayer was, “Lord I believe, help my unbelief.”

As I look ahead to the 20s, I don’t know if they will be roaring or calm. I am not even going to attempt a ten year plan and my crystal ball shattered long, long ago. The only thing I do know (and have to constantly remind myself of) is that my Father in heaven loves me and my family with a furious, inexhaustible love and will bring everything about for my good and his glory.

Check back in another ten years. Maybe.

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Hurry Up and Wait

“Hurry up and wait” is a phrase that some who have served in the military my be familiar with. It is also a phrase that describes something that those who have Huntington’s Disease or care for someone who has it have to keep in mind in their day-to-day.

When Jan and I went to the Huntington’s symposium last year, one of the speakers told a story of speaking with a man with HD. He would ask a question and the man wouldn’t answer right away, so the speaker would ask him a further question to clarify. The man again wouldn’t answer right away. After a few minutes of this, the speaker asked the man if he was getting frustrated and the man told him that he indeed was getting very frustrated. The man said that the speaker kept setting his clock back. When asked what he meant the man described his thinking process as a hand on the clock. As he tried to process each question, the hand was moving from twelve o’clock toward six o’clock. Each time the speaker asked him another question, the hand was interrupted in its movement and had to reset back to twelve o’clock.

Hurry up and wait is one of those aspects of the new normal for those affected by HD. The processing of questions, ideas, etc. is slowed down. As the disease progresses, the person may lose a great deal of the ability to carry on conversations because of the length of time needed to process. This can lead to frustration for the one who has HD, the ones who are caretakers, and friends and other family members. Hence the reminder to hurry up and wait. Patience is needed by all involved. Those with HD can be just as frustrated, if not more so, than others around them.

As we journey together through this new normal, we are having to learn to be patient. I am learning that the answers will come if I am patient enough to wait. Jan is learning to be patient with me when I just think about the “hurry up” part of the phrase. Even though it is not easy, I think it has given me a greater appreciation of Jan as my wife and as a human being with worth, regardless of whether or not she comes up with a quick response.

I would appreciate your prayers as we journey down this back road together.

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Getting Personal

May is Huntington’s Disease Awareness month. This month is significant to our family. Last summer, my wife Jan was diagnosed with HD. Later, we found out that both of our children and one of Jan’s sisters also have it.

HD is a genetic, fatal neurological disease for which there is no cure. Yet. If you want to find out more about it you can go to https://hdsa.org/what-is-hd/overview-of-huntingtons-disease/?

As you can probably guess, the diagnosis of a disease such as this has changed our lives. After all, since there is no cure, it will end in death. There is currently no treatment for the disease, only for the symptoms. As the disease progresses, there will be issues with memory and processing, problems with balance and movement and issues with speech and swallowing. Death is often caused by pneumonia, heart failure, choking or other complications. Depending on when the symptoms appear, the course can run from ten to twenty five years.

There are varying degrees of HD. How severe the disease will be depends on the number of “repeats” in a particular gene. The lower the number, the shorter and less severe. The threshold number is 40. That is Jan’s number. The folks with the higher numbers usually show symptoms between the ages of 30 and 50.

We are in a season of trying to settle into a new normal, with only a limited idea of what the future will look like. We know that we have to trust that our loving Father has us in his hands, and that he will be with us through whatever may come. There will be days ahead when Jan will not be able to do many of the things she once did, and there will be times of frustration and wondering.

Our children also face the unknown, but there is encouraging news for them. A number of clinical trials are showing promise, and there is a possibility of a future treatment that could effectively cure HD. We hope and pray that medical science is able to accomplish this soon.

We would appreciated your thoughts and prayers for us as we travel down this back road together.